Thursday, September 11, 2014

Putting on a Front

We live in a world that is consumed with appearance.  We have to put on this front that we have it all together.  We have to wear the right clothes, do the right things, and say the right things.  We base our lives on how other people are or are not living their lives.  We can easily force ourself to fit into this perfect little mold, whether it is really us or not.  It is sad, to say the least.

I will be the first to tell you that this girl does not have it all together.  But because of all the images out there as to what we should be doing and what our houses should look like, I have really been struggling.  My husband tells me on a daily basis that we do not need to have it all together.  And day by day I am concentrating on that and trying to come to terms that I do not need to have it all together.

I am a mom, I have a crazy toddler, who is extremely active.  I don't get much done during the day because I focus most of my time on Micah.  I love being a mom, but I beat myself up that I can't always keep up with the house work.  It is daunting and never ending.  Then throw the grief issues into the mix, phew, yeah I am far from having anything together over here.  Anyone out there with me?

Grief is this thing that fits in no mold.  There is no right way or wrong way.  You just do what you do.  It's scary and I can honestly say that it is lonely.  I feel like no one gets me and no one knows what to say to me.  It's exhausting and painful.  It comes and goes in a matter of minutes or seconds or days.  It hits like a ton of bricks when you least expect it.  It is like nothing I have ever felt or experienced.

I remember reading something a while back about throwing your to do lists out when you are dealing with grief.  You should not put a time on getting stuff done because some days you need to just do nothing.  And you aren't going to be able to get stuff done, so looking at this never ending list is just going to make you feel worse.  I am the queen of making lists.  I LOVE making lists, sick I know, but it is totally the truth.  Nothing like getting something done and being able to cross it off, feels good right?  So imagine me when I read that you should avoid making to do lists.  I thought it was crazy and I of course have still been making lists.  Hmmmm maybe that's why I have been feeling so overwhelmed lately?

So I am opting out of my silly little never ending lists.  I am going to let go of the reins a little bit and see where that takes me.  If that means my house gets a little messy, then so be it.  My hope is that instead of focusing so much on having it all together, I can spend some more time getting myself together.  I spend so much of my time caring for my family, making sure laundry is done, dinner is made, dishes are clean, clothes put away, and the list goes on.  I tend to forget that it is just as important to take care of myself and my needs.  And part of that is feeling the pain of losing my sweet Asher.

So please, if you look at my Facebook page and my blog posts and my pictures and think I have it all together, you are so totally wrong.  I am far from having it together, I am just taking life one day at a time, trying to sort through all my thoughts and feelings, trying to make sense of this confusing world I live in, trying to find peace in the midst of my pain.

Tuesday, September 2, 2014

Life After Loss


Life after loss is hard, obviously, that's a given.  But it is so much more than just that; it is beautiful and sad and confusing and heartbreaking and emotional and lonely and joyful all mixed into one.

For most of you that have shared this journey with us, your lives have returned back to normal.  I cannot blame you for that and I cannot hold that against you.  But please understand that my life will never be normal again.  There will always be this sweet little boy missing from our family pictures.  There will always be a part of my heart missing.

Not only am I grieving the loss of sweet baby Asher.  I am grieving an entire lifetime of precious memories that I will never get to have with my sweet boy.  I am also grieving the mom that I used to be, the friend that I used to be, the wife that I used to, and the daughter that I used to be.  My life is different now, my outlook is different;  I am far from the same girl I used to be, no matter how much you think I may be.  Losing a child changes you.

Life must go on, believe me, I get that.  But this new life is quite different from what it used to be.  It's hard for me to be around new people.  I try to avoid engaging in conversation because I know the words are coming, "how many kids do you have?"  I tell them the truth and they get that look in their eyes like they are scared silly and terrified and just want to run away.  I lie to them because I want to avoid that reaction and I feel guilty like I am disowning my own child.  Tough stuff, let's just say that.  Please friends, keep this in mind when someone answers this question in a way you did not expect.  Talk with them, love them, support them, encourage them.  We want to share our child with you, we want the world to know we have a baby in heaven.  I long for people to talk about my sweet Asher, to say his name, it is music to my ears, it warms my heart.  

So you ask how can there be days filled with joy?  The love I have for Asher is like nothing I can explain.  I love Micah and I love my husband and I love my family with all of my heart.  But nothing will ever compare to the love and the connection I have with Asher.  The love I have for Asher runs so deep.  That boy is special, that about sums it up.  And that is how there is joy.  When I think of Asher, my heart is filled with joy because of the relationship I share with him.  The lessons he has taught me, the wisdom he has given me, the strength he has left me.

Joy because Asher has changed me; I am a better mom now than I ever was before.  Joy because my hurting and my story can bring someone else hope.  Joy because I have a God who loves me.  Joy because I get to see my baby boy again one day.  Joy because I have experienced a love like no other. Joy because I can wake up every day with a smile on my face.  Joy because I am loved and taken care of.  Joy because I have two handsome little boys, one here on earth and one watching over me in heaven.  Joy because there is hope after the storm.

So much has been taken from me.  So much pain, sorrow, and grief surrounds me.  So much it can be overwhelming at times.  But I cannot help but focus on the good and what has already and what will continue to happen because of Asher's story.  He may be physically gone, but I can tell you one thing, his story will continue to live on.

Very truly I tell you, you will weep and mourn while the world rejoices.  You will grieve, but your grief will turn to joy.  John 16:20


Tuesday, August 26, 2014

You Are My Sunshine

In true typical Erin fashion, when I plan something outdoors, mother nature decides it should rain.  Take my wedding for example, I had always dreamed of having an outside wedding.  Well, the week prior to our wedding, it rained and rained and rained.  There was a hurricane on the coast and it was sending lots and lots of rain.  All week my dad kept saying those dreaded words, "Erin, what if it rains?  We need a back up plan."  There was a tent covering the back deck, so if need be the ceremony could be held there.  Time for the rehearsal, what was it doing?  Raining buckets, I mean it was so loud on that deck that we could not even hear each other talk.  Time for the wedding, what was it doing?  It was absolutely beautiful out!

The weather forecasts often predicts rain when I plan things, please take note of that if you ever want me to plan something for you.  With that said, the weather channel is normally wrong, and it usually turns out to be a beautiful day!  And oh what a beautiful day it was on August 2, the day of Asher's memorial service.

One of the main reasons that we went back Maryland was to have a memorial service for our sweet Asher, a service that all our family would be able to attend.  Asher was and always will be special to all of us and it was important for me that we were all able to celebrate him together.

I remember the night prior to the service, looking at my mom with tear filled eyes and saying how in the world am I going to be able to get through tomorrow?  There has been several times over the past months that I said those same words and each time I came out a tad bit stronger.  I have been carried, there is no way I have been able to endure all that has happened on my own; it is truly amazing to see God meet you right where you are, take your hand, and walk, drag, or carry you along.

The service started and I remember sitting there in the front row, looking at the pictures of my sweet boy on the table wondering if this was real life.  I was feeling extremely numb and kind of like I was watching all of this unfold before my eyes.

With a box of tissues, my husband beside me, and all my family behind me, we celebrated and memorialized our sweet Asher.  The service was beautiful beyond words, more perfect than I could have ever imagined.  The sun was shining, the breeze was blowing, I felt such a peace during that service.

We sang songs, shared stories, and my wonderful Uncle Rich talked about how God uses trials for our good.  He calls us to be faithful servants and to follow where He leads us.  Asher has taken us all to a place we never imagined we would be.  He has caused us to ask God why.  He has forced us to come together as one.  He has strengthened us.  He has caused our faith to grow deeper.  He has brought us to our knees.  He has made us love more.  And all that was part of God's perfect plan.


Asher was given his first lacrosse stick at the service and now it is hanging in Poppy's office on the wall of fame.  This was a total surprise to me and I couldn't think of a better gift to give our little boy.  We are a lacrosse loving family, in case you didn't know.  We all played lacrosse, I don't think we had much of a choice, did we dad?

Since we knew we would not be in Hawaii forever, we opted to have Asher cremated.  To us, cremation just made sense.  Asher was created from the dust.  There seemed something so pure about having him in his original "state of being."  Just like the song, You make beautiful things, you make beautiful things out of the dust.  We took his dust and planted a tree in my parent's yard in remembrance of him.  The tree is a Crepe Myrtle, which means it will bloom every July for Asher's birthday!  We all took turns placing a shovel full of dirt around the tree and finished with a beautiful prayer around that tree as we were all holding hands.

And ended it all with fellowship, laughter, and good ol' Maryland crabs!

I look back on that day and just smile, it was beautiful and touching and sad and happy all wrapped into one!








Tuesday, August 19, 2014

The Promise

While we were on the mainland, we spent some time in Virginia visiting my in laws.  My father-in-law is a pastor, so on Sunday morning we all piled in the church pew for church, kids and all!  The people at this church were familiar with our story and have been faithfully praying for us over the past few months.  After church, several people came up to us and gave us hugs and said they were continuing to think and pray for us.  One gentleman in particular will always stick out in my mind.  He pulled Sam aside after church and said that he had lost twin girls years ago.  They were born premature and due to the lack of medical knowledge at that time, they only survived 8 hours.  Sam shared all of this with me in the car on our way home and come to find out this gentlemen had lost his dear wife 3 months ago.  The only thing I could think about was the smile that must be on that lady's face because she has been reunited with her sweet baby girls in heaven.  The thought that she is hugging and kissing her babies again brought tears to my eyes.  I anxiously look forward to the day where I get to do the same with our sweet Asher.  Oh the promise of heaven and eternity! 

I have always known heaven was up there and that it is our forever home.  A home free of pain and suffering, a home filled with joy, a home filled with peace, a home spent worshiping our Lord and Savior.  Now that is a place I want to call home!  I find myself thinking of heaven quite often these days because I know Asher is whole and complete up there loving life.  So often when I am driving in the car, I find myself looking up at the sky wondering what is going on up there and what my little boy is up to.  I want him to be here with us more than anything, but if he has to be somewhere away from us, there is no better place than to be playing trucks in heaven with our Father.

Sam and I created Asher, he is our child.  I carried him in my belly for 9 beautiful months.  Part of me and part of Sam and even part of Micah is up there in heaven.  I feel like I have a personal connection with heaven and maybe that's why I think of it so often.  I'm not sure what it is, but regardless I am thankful for the change of mindset that Asher has brought on.  Instead of worrying about petty stuff, it seems more fitting to smile and say it's all going to be okay.  None of that stuff matters, money is just money and we can't take it with us.  Worrying is not going to make anything better.  Planning is silly because we all know what happens when we plan things.  I have so much more of an eternal mindset than I ever did before.  This place is not my home, we are just passing through.

However, as it is written:  "What no eye has seen, what no ear has heard, and what no human mind has conceived"-the things God has prepared for those who love him-  1 Corinthians 2:9


Sunday, August 3, 2014

My Sweet Asher

It has been one month since we said hello and see you soon to Asher.  My heart still aches for Asher and my arms still long to hold him again.  The pain is still so raw and most days I feel like I am on a roller coaster.; life without him is so hard.  This is the letter I wrote to the little boy who changed my life and made me a better mommy because of it.

My Sweet Asher,

I found out I was pregnant with you on your brother’s first birthday. I couldn’t wait to FaceTime with your daddy and tell him the news. We were overjoyed to say the least. From the minute I saw those two faint lines on that test I was so in love with you. And with every passing day I loved you even more.

As the road got rougher, you got stronger. The doctors gave us the option to terminate the pregnancy and we knew that was not an option, we knew that God had a bigger plan for you. A bigger plan than I ever imagined. I knew your dad and I were chosen to be yours parents and love you like we would any other child. The medical world said you were not compatible with life, but your kicking in my belly told me otherwise. You my sweet boy were such a fighter and you fought until the end.

I miss you more than words can say; I will always miss you. I will miss hearing your heart beat. I will miss those mornings watching Thomas with Micah on my lap and you kicking in my belly. I will miss your little face and those tiny little hands. I will miss watching you dig in the dirt and play in the ocean. I will miss the sound of your voice. I will miss teaching you how to play lacrosse. I will miss hugging and kissing you. I will miss watching your grow up. I will miss watching you and your daddy work on cars together. I will miss being your mommy and kissing all of your boo boos. I will miss reading stories and praying with you. I will miss teaching you how to ride a bike. I will miss your smile and the sound of you laughing. I will miss the pitter patter of your feet upstairs. I will miss watching you play along side your big brother. My heart aches thinking of all the things I will miss about you.

I’m not sure why you had to go so soon; I will never understand that. But it brings me comfort knowing your short time with us here on earth was so meaningful. I pray that you know how much you are loved by all of us, and how your life has impacted us all. You were sent to us for a reason and I am forever thankful for you. You taught us more than you will ever know. Thank you for teaching us how to love with no limits. Thank you for reminding us how special this life is and that none of it should be taken for granted. Thank you for teaching me to be strong and fight. Thank you for opening my eyes and my heart. Thank you for inspiring me to write and reach out to others. Thank you for showing me what is really important in life. I will forever be changed because of you.

I carried you all your life and will cherish the time we had together for as long as I live. While you were with me you never knew anything except warmth, love, and happiness. I love knowing that Jesus greeted you when you first opened your eyes.

Though you may be physically gone, you will forever live on in my heart. I am thankful for the promise of heaven and eternity. I am hopeful that I will see you again one day.

I love you with all of my heart and cannot wait to see you. See you soon my sweet boy.

All my love,
Mommy

Wednesday, July 23, 2014

Forever and Always

The seconds, minutes, and hours after Asher was born are some of the most painful, yet most beautiful memories ever.  Memories I have played over and over in my head countless times since that day.  There is not a minute that goes by that I do not picture that beautiful face of his and wonder what he is doing right at that moment.

I loved Asher from the very minute I found out I was pregnant.  And with every passing day, I loved that sweet boy more and more.  I wasn't sure I could quite possibly love him any more than I already did, until he was born.  His tiny little hands and little toes, his sweet little nose and mouth, and his red hair...every part of him just melted my heart.  He was beautiful.

The minutes after Asher was born were a bit crazy to say the least, it felt like a whirlwind.  He was born totally unexpectedly so Sam had to frantically call our family and tell them to come now.  I don't think he even told them what happened, he just managed to say get here now through his tears.  A quick phone call was also made to our dear friend and photographer, as well as our pastor.

Sam was able to cut the cord and we watched as our nurse gave sweet Asher a bath in front of us.  I think Sam and I were still in shock that Asher was here, so sitting back watching the nurse give him a bath gave us a minute to catch our breath and let everything soak in.  She wrapped him up in a blanket and put a tiny hat on his head and gave him to me to hold.  Through the tears I held on to that little boy so tight, trying to soak up every part of him, so I would never forget.

Our parents arrived with tear filled eyes.  Each of them held their grand baby and gave that little boy nothing but love.  He was passed around, hugged, and kissed.  It touched my heart to see the love in that room that day, images and feelings I will never forget.

A good friend snuck into the room and took tons of pictures of everyone with Asher.  You can see the pain in these pictures, but you can also see the joy and beauty.  I cannot thank her enough for these pictures, they are absolutely beautiful, I will treasure them forever.

Our Pastor baptized Asher and prayed a beautiful prayer over our little boy.  A prayer that I do not remember the words, I just remember that it was absolutely beautiful and warmed my heart knowing that our baby was resting in the arms of Jesus right at that moment.  Thank you Annie and thank you Sean for being a part of our day, we are forever grateful to both of you!

We spent our day being Asher's mommy and daddy.  We held him, we kissed him, we rocked him.  We took his foot prints, we attempted making sand prints with his tiny feet.  We read him stories.  We laughed.  We cried.  We admired every thing about him.  We prayed.  We took a million pictures.  We cuddled.  We did nothing but love on him!

One of my favorite moments was me holding Asher, while Sam was sitting beside us reading to him. We brought two special books with us to the hospital:  On the night you were born and I'll love you forever.  Sam started reading I'll love you forever and when he couldn't read anymore, his mom picked up.  And sang,"I'll love you forever.  I'll like you for always.  As long as I'm living my baby you will be."  It was beautiful and brings tears to my eyes just thinking about it.  There was not a dry eye in that room.

Our parents said their goodbyes later in the afternoon.  It was hard watching them say goodbye and leave, but I am so grateful for the quiet moments we had with just the three of us.  We opted not to bring Micah to the hospital.  He would have yanked every cord out in about 30 seconds and would have been doing circles around the room.  We felt it was best to keep him away from the hospital since he wouldn't understand what was really going on.  We got Asher dressed and wrapped him in his prayer shawl.  He also had a crochet lei around his neck, a gift from one of the midwives.  We talked with our sweet boy and prayed over him.  We were given as much time as we needed with Asher and I am so thankful for that.

Around 7pm, we were discharged from the hospital.  The hardest moment of my life was leaving Asher in the arms of someone else.  It was painful.  We left Asher in the arm's of our midwife, who was surrounded by a few nurses.  These people are near and dear to my heart, I'm not sure they will ever know or understand how much they mean to me; they are forever part of Asher's story.  Walking out of that quiet hospital with empty arms was really hard, a feeling no one will understand unless you too have walked those steps.  A feeling I will never forget.  A part of me will always be missing.

And when we walked to our car, there was a rainbow off in the distance.  Yes, we live in Hawaii and see rainbows all the time, but I still am in awe each time.  I never take their meaning or timing lightly.  In that moment I felt the sense of it's all going to be okay.

I can honestly say that I have never felt the presence of God as much as I did that day in that labor and delivery room.  He was there and where we are weak, He makes us strong.  I can fully attest to that.  Looking back, I think to myself, how did we do that?  How did we make it through that day?  There is no other answer, except that we were carried.  In the midst of so much sadness and so much chaos, He was there.  There was a peace in that hospital room that I will never be able to explain.

Though Asher may be physically gone, he will forever live on in my heart.  I am thankful for the promise of heaven and eternity.  I am hopeful that I will see my sweet baby boy again one day.


                                                 













Wednesday, July 16, 2014

See you Soon

The day Asher was born is a day I want to remember for the rest of my life.  His story is filled with much heartache, but it is sealed with so much love and joy.  July 3 is a day I will never forget, nor do I ever want to forget.  I want to remember every last detail of that day, which is why this post is so important to me.  It may be too much for some to read and that is totally fine.  I am writing this for my recollection because this bittersweet day was one of the best and worst days of my life...a day that has forever changed me.

It all started on July 2.  I woke up in a grumpy kind of mood, almost like I had a funny feeling that something was about to happen.  They say us moms just know these kind of things and it turned out this mom was right.  The ultrasound technician could not find any pockets of fluid around Asher, which meant that it was time to deliver our little boy.  The doctor came in our room and was overly excited and enthusiastic that we were going to have a baby today.  We looked at him with tear filled eyes and thankfully he got the hint and left the room.  I struggled with his happiness, I honestly wanted to punch him in the face.  Did he not understand what all of this meant?  I was only 36 weeks pregnant and delivering our baby meant walking into a whole new chapter I wasn't quite ready to face.

The midwife came into our room with a much nicer and calmer demeanor.  She discussed how we were feeling and informed us that we would be admitted to the hospital today.  She took care of our every need and was extremely helpful with anything and everything we asked.  We were given a large room at the end of the hall, it was rather secluded and away from all of the hustle and bustle.

We were totally unprepared and were expecting that we would at least have time to go home and get our belongings.  That wasn't the case at all!  So after a quick few phone calls and some text messages arranging babysitters for Micah we got everything worked out!  So thankful for family who took care of all the details at home and brought us everything we needed at the hospital.  And especially thankful for dear friends who took such good care of Micah while we were at the hospital.  I am so grateful for all of you!

This started the long long long day at the hospital.  It was around 11 or 12 that they finally started my IV and all that good stuff.  After a few mishaps with the IV, the 3rd one was finally secure and in a good place on my arm.  A gourmet lunch (Wendy's) was delivered by our wonderful family and we were ready to take on the day.

I had Micah when I was 41 weeks pregnant.  My body was not ready or at all prepared to have a baby at 36 weeks, so my body had to play a lot of catching up in a short amount of time.  This was not ideal for me or Asher.  We knew that the induction could take a long time and it did.  By Wednesday evening there was not a lot of progress.  Our families were home sleeping waiting for a phone call to come to the hospital.

After many hours of cards and a very restless night I remember looking over at Sam and getting very panicky.  He prayed for sweet Asher and talked to our little boy.  It had been a while since I had felt him move and because of that I was starting to feel extremely anxious.  We chose not to have a fetal monitor during delivery because it would have crushed us knowing we had lost him.  Our sweet nurse came in and stood by my bedside and held my hand.  None of us had any idea what was going on with Asher, but we continued to be hopeful.

At some point in the middle of the night I opted to have an epidural.  I was not in excruciating pain, but I was extremely anxious and panicky.  The induction was taking much longer than I expected and wanted.  I knew the longer it took, the more stress it was putting on Asher.  I was worried and tired and it was impossible for me to relax.  The epidural calmed me down some and even allowed me to get a little sleep.

The doctor came in early in the morning and stated that the pitocin didn't seem to be working, so they may need to look at other options in the next few hours.  I felt defeated and had this funny feeling that we had already lost our sweet little boy.  At this point it was so hard to be hopeful because labor had been going on for so long and we knew what that meant for Asher.

Our family was still at home waiting for the call to come to the hospital.  We were thinking we would have time to call them when things were getting close, so they could be in the waiting room when Asher was born.  Unfortunately, that was not the case.

Around 9am, one of my monitors was beeping because the contraction machine had run out of paper. The nurse came in and that was when Sam noticed a spot on my sheet and mentioned it to the nurse.  We were thinking maybe the catheter was leaking or something.  My epidural was extremely strong, so I could not feel anything.  The nurse peeked under the blanket and stated that she was going to go get the doctor.  We did not think anything of it.  When they came back in our room, our world came crashing down on us.  The doctor said, "You are really numb.  Asher is here."  Our sweet boy was born into the arms of Jesus at 9:09 in the morning on July 3.  He weighed 4 pounds 3.7 ounces and was 18 inches long.  He was absolutely beautiful.  He was and forever will be our sweet little Asher.  And we will forever be his mommy and daddy.



This is enough for now, but I plan on sharing about all the bittersweet moments we had with our sweet little boy that day and all the love we gave him before we had to say see you soon.

Wednesday, June 25, 2014

My heart is breaking

After a sleepless night, we made our way to our appointment to check my fluid levels.  It seems that with these babies things start changing pretty quickly towards the end, so I was hoping for the best, but also well aware that we may get bad news today.  And so we did.  Last week my fluid levels were at 7, today they had dropped down to 5.

We spent some time with the doctor discussing our options, none of which are ideal.  We have decided to return to the doctor again on Friday to check my fluid levels.  If they have remained the same, the induction will be scheduled for Monday.  If the levels have gone down even more by Friday, then the induction will most likely be sooner.  There is always a chance the fluid levels could increase, but the doctor prepared us that that may not happen since they have continued to go down this past week.

All in all I would say I am pretty crushed.  I knew the day of meeting Asher was coming, but I am not ready.  And this is not how I envisioned everything playing out.  A typical baby without a chromosome abnormality born at 36 weeks would most likely be fine.  However, due to the special circumstances, being born this early is not ideal for our sweet Asher, he is going to have a hard time.  Given that the induction may take a while because I am still only 36 weeks could also be too much for Asher to handle.  All of this is breaking my heart.  I want to meet our little boy, I want to get a chance to hold him and love him while he is still alive.  Please continue to cover our family in prayer, we need it in the upcoming days and weeks.  I know that God is in the midst of this and He is preparing the way for us.  But even still, we are scared and unsure of what tomorrow will bring.

We have spent most of the morning and afternoon today making phone calls and scrambling around trying to get details squared away.  Our families are in the process of changing plane tickets and rental cars.  I am trying to prepare myself in whatever way I can and get as many logistics worked out as possible.  We're thankful for friends who have already said they would help in any way that they can, especially with our sweet, wild, Micah.

We are thankful for each and every one of you and so appreciate your faithfulness and commitment to praying for us on this journey.  I will update as we know more in the coming days.

Sunday, June 22, 2014

I Got the JOY

Happiness:  the state of being happy; an experience that makes you happy; a pleasurable or satisfying experience.

Happiness is...
A delicious almond joy latte
An afternoon spent in the warm sun relaxing at the beach
Seeing the ocean outside of your window
Curled up on the couch with a good book
A rainy day that forces you to be lazy and stay inside
My husband coming home from work early
The feeling I get when the house is all clean
Shopping
A new haircut
Bedtime stories with Micah
A big bowl of ice cream topped with rainbow sprinkles
My husband making dinner
A massage and pedicure
Receiving a card in the mail
Micah Micah Micah
Two furry dogs greeting you when you come home
FaceTime with family

All of the above things make me one happy girl, among a million other things I'm sure.  However, happiness is fleeting.  Happiness comes and goes.  Sometimes it stays for the duration of your cup of coffee, other times it lasts for days or weeks.  There's no telling when it will hit you, or why it will hit you, but the feeling of happiness will come.

It will also go away, then what happens?  When your world comes crashing down in front of you, where do you turn?  Do you still feel happy?  Do you throw in the towel?  Do you turn into a miserable person?  Do you self-medicate?  Do you feel angry?  Are you depressed?  Can you be happy in the midst of darkness?

My perfect, content, happy, comfortable little world came crashing down on me just a few months ago.  The days I have endured thus far have been the hardest days of my life.  People call me strong and say they don't know what they would do if they were walking this journey.  People say I have a positive attitude and that our story is encouraging and uplifting, but still they don't understand how we do it.  I got one word for you.

JOY...not to be confused with happiness.

So what is this joy thing?  Remember this song from sunday school when you were a kid?
I got the joy, joy, joy, joy, down in my heart...down in my heart to stay.

The important thing about joy is that it is always present.  It is not fleeting, it is here to stay.  The best way I can create an image of joy is this:  Since we received Asher's diagnosis, our world has changed.  The grief process started, the tears came, and they still do come quite often.  I still struggle with what all of this means, but at the end of the day, I have a peace that passes all understanding.  I don't feel like I should have this peace about Asher because the what could be is truly heart wrenching.  But it is a total God thing, this peace feeling is one that I have heard of, but never truly felt.  And here in the middle of the storm, I have that peace over flowing in my heart.  I have this feeling that no matter what happens, everything is really going to be okay.  I have this inclination that I do not need to worry, that some One much greater than me is in control.  I have this feeling that even in the midst of all this darkness, something beautiful will come from all of this pain and sorrow.  And that is what I call joy in my own personal life.  I am happy about plenty of things in my life right now, but there is also a lot that has rocked me to my core, a lot that makes me unhappy and confused, but that is all okay.  I know deep down that I will be okay.

Happiness can and will be stripped away.  When it is taken away, it forces us to our knees and that is where we find the meaning of true joy.  That is where we find this "thing" that will keep us going.  So where is your joy coming from?



Alright here is the latest with sweet Asher boy.  Today marks 35 weeks.  Last week at our appointment my fluid levels were quite low.  Typically at the point in pregnancy, the levels should be between 12 and 14cm, mine were measuring at 7cm.  At 5cm is when they start to get concerned.  This could be due to Asher's kidneys.  His kidneys have always looked a little different and a little enlarged on ultrasounds, so that could be why my fluid levels are appearing lower.  With that said, we will be going back on Wednesday to check them.  Please continue to pray for us and that my fluid levels would go up so we do not have to be induced earlier.  We are not ready to meet our little guy, we know that the longer he can thrive inside of me, the better off he is.  Please continue to pray that Asher keeps fighting.  I was pretty crushed after the appointment the other day.  I feel like we have made it this far without any real complications, it was painful to hear that things were not going as well as they had been.  Please pray for Sam and I over the next few weeks as there are A LOT of emotions swirling around.  Please pray for our time with Asher, it is our ultimate goal for him to be born alive and to be able to spend some time with him.  Please pray for any decisions that may need to be made as far as Asher's care.  Thank you, we cannot thank you enough for the prayers.


Wednesday, June 4, 2014

The Inside Scoop

When I started this blog a little over a year ago, we were in the process of some serious changes.  We had a new baby and we were traveling across the country on our way to Hawaii.  I envisioned this blog as a place where I could share what we were doing all the way out here with our friends and family.  A place where we could share our stories and experiences, a place where we could share the beauty of our new home.  Obviously, this blog has turned in to so much more than just that.  Our lives have drastically changed and there is so much more to share on here than I could have ever imagined.  I guess it got me thinking recently about why do I blog and what is this all about.  I think some people think blogging is dumb and it is people who have no lives and just like to sit around and brag about what they are doing and how wonderful their families are.  Hmmmm, let's see, I will be the first to tell you that my family is wonderful and I would not be where I am today without any of them, but that is far from the reason I decided to blog more.  And do I have a life?  Well, yes I actually do!  I spend my days caring for a rambunctious toddler who never stops moving!  I don't get a whole lot of free time just to myself, but when I do, I try and make it productive for me.  And part of me being productive is writing this blog.

So why do I do it?

I blog because it is therapeutic for me.  It helps me to get my thoughts and feelings out in writing because a lot of times what I am feeling or thinking is hard to actually say.  It is a lot like journaling, except I am not keeping them private, I feel it is beneficial for everyone to see the ins and outs of our struggles, and the steps we have taken to work through them.

I blog for my sanity.  I spend my days with an 18 month old who is extremely cute and extremely active.  He keeps me going, in more ways than one, and I love him dearly for that.  He wears this momma out.  He speaks his own little language and is all about anything relating to cars, trucks, airplanes, or helicopters.  So needless to say, we do not have many truly meaningful conversations.  Yes, I spend time with friends, but they are mommies too!  We spend our time together changing diapers, chasing kiddos, on the edge of our seats, correcting, encouraging, supporting, and teaching our children.  It is hard to have a serious conversation in the midst of all the chaos, so this blog is one of my outlets.  Probably helps my husband too because some days I feel like I do not shut up when he walks through the door.  Ahhhh adult conversation, I know you all know what I am talking about!!!

I blog because somewhere out there is a dear family walking this same journey that we are walking.  A family who is unsure of how they are going to make it through the day.  A family who has no clue where to go from here.  I write this blog for them, in hopes that our story can be an encouragement for them.  I pray that our story will reach those that need to hear it because unfortunately we are not the only ones that will have to walk this path of the unknown.

I blog because these are the happiest days of my life.  I have so much to be thankful and grateful for and it is so important for me to focus on all that I do have, rather than what I do not have.

I blog because this is one of the scariest and darkest times of my life.  I am terrified of what is to come and I hate not knowing what the next few months will bring.

I blog because most do not know what it is like to walk down the road we are walking.  I want people to know how it feels to be in our shoes, not so they feel sorry for us, but so they can support us.  And support those around them who may one day walk in our shoes.  No one wants to talk about all this scary stuff, but it needs to be talked about and thats why I share our story.  I share our story so you think about what you say to a pregnant woman who is carrying a baby with a chromosome abnormality.  I share our story so you can love her for who she is and what she is doing.

I blog because we have hope.  No matter what the medical world tells us, or what the insensitive doctor tells us, we have hope and will never lose hope.

I blog because God is doing something pretty amazing in the lives of our sweet little family out here in Hawaii.

I blog because we want all of our friends and family to know specifically what is going on.  It is hard for Sam and I to tell everyone what is going on.  It is so much easier for me to get on here and write it all out, so we do not have to continuously repeat ourselves.

I blog because we all have our battles and trials.  Mine is not any harder than yours, but it is how we handle these battles that matter.  I share my story so people can relate, so people can find encouragement, so people can find strength to face their own storm.

I blog because you are all near and dear to our hearts and we want your support.  I strongly believe in the power of prayer and I share our story so you can pray for us and pray for our sweet Asher.

I blog because I want to remember every step of this journey.  There are days where I go back and read my blog from the beginning because some times I just feel like I am in a dream and don't believe it is all real.  The past few months have flown by, but in so many ways feel like they have dragged on.  Regardless, I do not want to forget any part of this process.  There is a perfect little boy growing inside of my belly, a boy who we created and gave life to, a boy that will forever and always be a huge part of our family.  Despite all of the emotions that have been wrapped up inside of me the past few months, the greatest is love.  I couldn't be more in love with Asher, he continues to bring us so much joy and laughter, despite all that is going on.  He has shown us the true meaning of love and how important is to really love those around us.

Carrying Asher has been such a blessing.  One of the hardest things I have ever done, but I would not trade it for anything in the world.  It was extremely important to me to have a family photo session done while I was pregnant because I wanted to capture us how we are right now.  We are smiling in these photos and happy together as a family, but I know that the emotions go so much deeper.  And I wanted to hold on to those memories forever.  These may be the only pictures we have of the 4 of us together, which makes them so near and dear to my heart.  I opted to get them taken sooner rather than later in the pregnancy because I just do not know how many days we have left with our sweet little boy.  I wanted to share a few of my favorites on the blog because this is a place where I am keeping our journey.  A place where one day I will want to and need to look back on this journey. A place where one day Micah will be able to read and see the the story he was a huge part of.  A place where I can clearly see how God is at work in our lives and using us in a mighty way.  A place where I can just be real and not worry about what people will think.  A safe place filled with so many emotions and lessons, a place that I am forever grateful for.












Sunday, June 1, 2014

Joy and Tears

Life has been pretty quiet lately and I am extremely thankful for that.  Sam took off a few days this past week, so we were able to soak up lots of time together as a family and bask in the beauty of Hawaii!  Our days have been filled with botanical gardens, water falls, kayaking, beach time, house projects, birthday parties, playgrounds, friends, and just plain hanging out being lazy.  We attempted kayaking in the bay the other day just to see how Micah would do.  We ended up staying out for an hour and a half and had a really good time!  The marina is near the hangars and flight line, so as we were out on the water the helicopters were coming in right over our heads.  It was pretty awesome to see and Micah had a huge grin on his face the entire time!  The past few days have been so nice and so needed.  I think we both were started to feel worn down and really exhausted with everything that has been going on.  I am feeling rejuvenated and ready to kick of a new week.  Yesterday Sam treated me to a massage and today I got to sit on the beach and relax while the boys played in the sand!  It was wonderful.


Last week we had an appointment with the pediatric cardiologist whom we are so grateful for.  He had looked in our file and saw that we named our son Asher.  The fact that he looked in to that and brought it up to us showed us how much he truly cared.  He treated us like we were humans, but most importantly he treated us like he truly cared for our sweet Asher.  He stated that he changed his perspective years ago in regards to babies with chromosome abnormalities.  He understands that some very well do beat the odds and he has been able to witness that first hand.  He said he would do whatever he needed to support us and I know that is completely true.  We even shared with him our terrible experience with another doctor and he apologized for that and recommended another doctor who may be better suited for us.  He definitely was going above and beyond what he needed to do.  So thankful for wonderful doctor's who truly care about their patients.

As far as Asher's heart, he has a VSD, or ventricular septal defect, which is a hole between his lower chambers.  This is something that will not cause him any trouble at the time of delivery, currently his heart is working perfectly fine and is not having to pump extra.  This is something that would require surgery a few months down the road, and if the time comes, that is something we will deal with.  For now, we are holding on to the fact that his heart will give him no trouble when he is born!

Our main concern lately has been when?  When will things happen?  And we brought this up with the cardiologist, despite the fact that he isn't our OB doctor we felt comfortable talking to him.  We stated we wanted our families to be here when Asher is born, but we don't know how to go about that.  He mentioned about being induced and that this would need to be discussed with the team of high risk doctors at their next meeting.  Again, he went out of his way and said he would bring it up at the next meeting!

So fast forward a week, we called in and got the word that the doctors all agreed to schedule an induction at 39 weeks, which will be July 20.  Praying that Asher keeps fighting!  An induction is not ideal, I would much rather go in to labor naturally, but we feel an induction is best for us.  Sam and I need our parents to be here for more reasons than one.  We need their love, their support, their encouragement, their presence.  We need them here to meet their sweet little grandson.  And we need them here in the event that we need to make some really hard decisions, we do not want to do that alone.  So with that said, we are so grateful that all of our parents will be flying in on July 16 and 17.  Already knowing that they have booked their tickets had brought me a great sense of relief.  Also a great sense of fear because I want all of this to work out, despite the fact that I have no control over it.

Life has been filled with so many joyful moments lately, but also so many tears.  We have discussed birth plans and what we want to do in different situations.  It is hard, never in my wildest dreams would I think I would have to be having this conversations with my husband.  We have started the process of contacting funeral homes so we are better prepared.  I know to you that may sound absolutely crazy, but we are strong right now, and I know that if we lose our sweet little boy, we will be so thankful that these arrangements have been taken care of ahead of time.  We are also trying to prepare ourselves for whatever is to come, and that means we would like to be prepared financially for all of this as well.  So instead of planning a nursery and picking out little outfits, we are forced to talk about scary things and make really scary phone calls.  This is real and may be hard for you to read or understand, but this is our life.

It is scary knowing that things can change drastically any minute or any day.  However, we have chosen not to live in fear and are continuing to move forward.  I am over joyed that I am 32 weeks today, our time with this sweet little boy is precious!  I am enjoying every jab, flip, and kick he makes, he sure does make me smile!  And I know he is loving every minute of spending time with his family, especially Micah.

Thank you for the prayers, please continue to pray for our little family!  This little boy may be small, but he is making such a difference in so many lives, and that brings us so much joy.  Please pray for strength for Sam and I, as every day seems to get a little harder.  Please pray that Asher would keep thriving!  Please pray for a miracle for our sweet little boy who we love so much!


Lounging, reading his book

Playground fun!

Walking through the botanical gardens 

Sweet Micah boy!

It's a beautiful day in the neighborhood

Feeding the ducks

Reading with mommy

Playing in the sand

Checking out the waterfall

Waimea Falls


Good morning!